North Carolina Resources

North Carolina Medical, Disability, and Special Needs Resources

 

Statewide Medical, Disability, and Crisis Navigation

 

• NC 211 (United Way of North Carolina)
  https://www.unitedwaync.org/nc-211
  Covers:
• Referrals to medical care
• Disability and special needs services
• Caregiver support
• Condition-specific nonprofit organizations

 

• 988 Suicide and Crisis Lifeline (North Carolina DHHS)
  https://www.ncdhhs.gov/divisions/mental-health-developmental-disabilities-and-substance-use-services/crisis-services/988-lifeline
  Covers:
• 24/7 mental health crisis counseling
• Suicide prevention
• Connection to mobile crisis teams

 

• NC DHHS Mobile Crisis Services
  https://www.ncdhhs.gov/providers/mental-health-developmental-disabilities-and-substance-use-services/mobile-crisis-services
  Covers:
• In-person crisis response
• Autism, I/DD, and serious mental illness crises
• Crisis stabilization and diversion from ER/jail

 

Health Insurance and Disability-Based Medical Coverage

 

• North Carolina Medicaid (Main Program)
  https://medicaid.ncdhhs.gov/
  Covers:
• Medical care
• Behavioral health services
• Therapies
• Long-term services and supports
• Waiver programs for disabilities

 

• NC Medicaid - Aged, Blind, and Disabled Coverage
  https://medicaid.ncdhhs.gov/eligibility/aged-blind-and-disabled
  Covers:
• Medicaid eligibility based on disability status
• NC Disability Determination Services (DDS)
  https://www.ncdhhs.gov/divisions/disability-determination-services
  Covers:
• Medical evaluations for SSI and SSDI disability determinations

 

Intellectual and Developmental Disabilities (I/DD)

 

• NC Innovations Waiver (Medicaid HCBS)
  https://medicaid.ncdhhs.gov/beneficiaries/nc-innovations-waiver
  Covers:
• Autism, Down syndrome, cerebral palsy, intellectual disability
• In-home personal care
• Community living supports
• Respite for caregivers
• Behavioral supports
• Supported employment
• Assistive technology
• Home and vehicle modifications
• Crisis services

 

• NC LME/MCO System (Tailored Plans)
  https://www.ncdhhs.gov/providers/lme-mco-directory
  Covers:
• Care coordination for I/DD and autism
• Service authorization
• Medicaid Tailored Plan management
• Crisis line access

 

• NC DHHS I/DD Services Overview
  https://www.ncdhhs.gov/divisions/mental-health-developmental-disabilities-and-substance-use-services/intellectual-and-developmental-disabilities-idd
  Covers:
• State I/DD service system explanations
• Policy and oversight information

 

Early Intervention and Pediatric Development

• North Carolina Infant-Toddler Program (Birth–3)
  https://www.ncdhhs.gov/itp-beearly
  Covers:
• Developmental evaluations
• Early intervention therapies
• Service coordination for families

 

• NC Title V Children and Youth with Special Health Care Needs
  https://www.ncdhhs.gov/divisions/public-health/children-and-youth-special-health-care-needs
  Covers:
• Care coordination for children with chronic medical conditions
• Family support and navigation

 

Autism-Specific Resources

 

• Autism Society of North Carolina
  https://www.autismsociety-nc.org/find-help/
  Covers:
• Education and training
• Support groups
• Resource navigation
• Caregiver support

 

• UNC TEACCH Autism Program
  https://teacch.com/about-us/
  Covers:
• Autism diagnostics
• Parent training
• Structured teaching supports
• Community-based autism services

 

• UNC Autism Research Center
  https://autism.unc.edu/
  Covers:
• Evidence-based autism resources
• Research participation opportunities

 

ADHD Support

 

• CHADD (Children and Adults with ADHD)
  https://chadd.org/chapter-locator/
  Covers:
• ADHD education
• Advocacy
• Parent and adult support groups

 

Down Syndrome Support

• North Carolina Down Syndrome Alliance
  https://www.ncdsalliance.org/
  Covers:
• Family support
• Education
• Advocacy

 

• Global Down Syndrome Foundation - NC Directory
  https://www.globaldownsyndrome.org/about-down-syndrome/resources/local-organizations/north-carolina-down-syndrome-organizations/
  Covers:
• Local North Carolina Down syndrome organizations

 

Traumatic Brain Injury and Neurological Conditions

 

• NC Medicaid Traumatic Brain Injury Waiver
  https://medicaid.ncdhhs.gov/behavioral-health-and-intellectual-developmental-disabilities-tailored-plan/traumatic-brain-injury-tbi-waiver
  Covers:
• Home and community-based supports for TBI
• Caregiver assistance
• Community reintegration

 

• NC DHHS Traumatic Brain Injury Program
  https://www.ncdhhs.gov/divisions/mental-health-developmental-disabilities-and-substance-use-services/traumatic-brain-injury
  Covers:
• Education and awareness
• Referral to TBI resources

 

• Brain Injury Association of North Carolina
  https://bianc.net/
  Covers:
• Education
• Support groups
• Resource navigation for brain injury survivors and caregivers

 

Assistive Technology and Communication Supports

 

• North Carolina Assistive Technology Program (NCATP)
  https://www.ncdhhs.gov/divisions/eipd/north-carolina-assistive-technology-program
  Covers:
• Assistive technology demonstrations
• Short-term device loans
• Device reuse programs
• Training and education

 

Employment and Independence (Disability-Focused)

 

• NC Division of Vocational Rehabilitation Services (DVRS)
  https://www.ncdhhs.gov/divisions/employment-and-independence-people-disabilities
  Covers:
• Career counseling
• Job training
• Supported employment
• Workplace accommodations

 

• NC Services for the Blind
  https://www.ncdhhs.gov/divisions/services-blind
  Covers:
• Independent living skills
• Assistive technology
• Employment services

 

• NC Services for the Deaf and Hard of Hearing
  https://www.ncdhhs.gov/divisions/services-deaf-and-hard-hearing-dsdhh
  Covers:
• Communication access
• Advocacy
• Regional support centers

 

Mental Health (Ongoing Care)

 

• NAMI North Carolina
  https://naminc.org/
  Covers:
• Education programs
• Peer and family support groups
• Advocacy

 

• NC DHHS Mental Health and Substance Use Services Hub
  https://www.ncdhhs.gov/assistance/mental-health-and-substance-use-disorders
  Covers:
• Treatment locator
• Program information
• Care navigation

 

Legal Rights, Advocacy, and Protection

 

• Disability Rights North Carolina
  https://disabilityrightsnc.org/
  Covers:
• Protection and advocacy
• Disability rights enforcement
• Abuse and neglect reporting support

 

• Legal Aid of North Carolina - Disability Benefits
  https://legalaidnc.org/disability-benefits/
  Covers:
• SSI and SSDI legal assistance
• Appeals support
• Benefits education

 

• North Carolina Council on Developmental Disabilities
  https://nccdd.org/
  Covers:
• Systems advocacy
• Community inclusion initiatives

 

Medicare Support (Disability-Related)

 

• NC Seniors Health Insurance Information Program (SHIIP)
  https://www.ncdoi.gov/consumers/medicare-and-seniors-health-insurance-information-program-shiip
  Covers:
• Medicare counseling for disabled adults and caregivers
• Plan comparison and benefits education

 

Condition-Specific Medical and Disability Resources (North Carolina)

 

Cancer (Adult and Pediatric)

• North Carolina Comprehensive Cancer Program (NC DHHS)
  https://www.ncdhhs.gov/divisions/public-health/chronic-disease-and-injury-section/comprehensive-cancer-program
  Covers:
• Statewide cancer prevention and control programs
• Patient navigation and survivorship resources
• Connections to screening and treatment supports

 

• UNC Lineberger Comprehensive Cancer Center
  https://unclineberger.org/
  Covers:
• Adult and pediatric cancer care
• Clinical trials
• Support services for patients and caregivers

 

• Duke Cancer Institute
  https://www.dukecancerinstitute.org/
  Covers:
• Cancer diagnosis and treatment
• Specialized oncology programs
• Patient and family support resources

 

• Atrium Health Levine Cancer Institute (Carolinas, incl. NC)
  https://atriumhealth.org/medical-services/cancer
  Covers:
• Comprehensive cancer care
• Supportive oncology services
• Caregiver education and support

 

Epilepsy and Seizure Disorders

 

• Epilepsy Foundation of North Carolina
  https://epilepsync.org/
  Covers:
• Education about epilepsy and seizures
• Support groups
• Caregiver training and safety planning

 

• UNC Comprehensive Epilepsy Program
  https://www.uncmedicalcenter.org/uncmc/care-treatment/neurology/epilepsy/
  Covers:
• Diagnostic services
• Medical and surgical epilepsy treatment
• Pediatric and adult epilepsy care

 

Multiple Sclerosis (MS)

 

• National Multiple Sclerosis Society - Greater Carolinas
  https://www.nationalmssociety.org/Chapters/GCR
  Covers:
• MS education and support
• Care navigation
• Programs for patients and caregivers in NC

 

• UNC MS and Neuroimmunology Clinic
  https://www.uncmedicalcenter.org/uncmc/care-treatment/neurology/multiple-sclerosis/
  Covers:
• Diagnosis and treatment of MS
• Disease-modifying therapies
• Long-term care planning

 

Parkinson’s Disease

 

• Parkinson Association of the Carolinas
  https://parkinsonassociation.org/
  Covers:
• Education and support programs
• Exercise and wellness programs
• Caregiver support

 

• UNC Movement Disorders Center
  https://www.uncmedicalcenter.org/uncmc/care-treatment/neurology/movement-disorders/
  Covers:
• Parkinson’s disease diagnosis and treatment
• Advanced therapies
• Care coordination

 

Amyotrophic Lateral Sclerosis (ALS)

•  
• ALS Association - North Carolina Chapter
  https://www.als.org/local-support/north-carolina
  Covers:
• ALS care coordination
• Equipment loan programs
• Caregiver education and support

 

Traumatic Brain Injury and Acquired Brain Injury

 

• Brain Injury Association of North Carolina (BIANC)
  https://bianc.net/
  Covers:
• Education and advocacy
• Support groups
• Resource navigation for survivors and caregivers

 

• NC DHHS Traumatic Brain Injury Program
  https://www.ncdhhs.gov/divisions/mental-health-developmental-disabilities-and-substance-use-services/traumatic-brain-injury
  Covers:
• Statewide TBI resources
• Referral and education programs

 

Spinal Cord Injury

 

• North Carolina Spinal Cord Injury Association
  https://www.ncscia.org/
  Covers:
• Peer support
• Education and advocacy
• Resources for individuals with SCI and caregivers

 

• Carolinas Rehabilitation (Atrium Health)
  https://atriumhealth.org/medical-services/rehabilitation
  Covers:
• Spinal cord injury rehabilitation
• Long-term recovery services
• Family education

 

Genetic and Rare Diseases

 

• North Carolina Rare Disease Advisory Council
  https://www.ncdhhs.gov/divisions/public-health/north-carolina-rare-disease-advisory-council
  Covers:
• Statewide rare disease policy and awareness
• Resource coordination

 

• NC Rare Disease Coalition
  https://ncraredisease.org/
  Covers:
• Support for individuals with rare diseases
• Advocacy and education
• Family networking

 

Cystic Fibrosis

 

• Cystic Fibrosis Foundation - Carolinas Chapter
  https://www.cff.org/chapters/carolinas
  Covers:
• CF care center connections
• Patient and caregiver education
• Financial and care navigation support

 

Sickle Cell Disease

 

• NC Sickle Cell Syndrome Program (NC DHHS)
  https://www.ncdhhs.gov/divisions/public-health/womens-and-childrens-health/sickle-cell-syndrome-program
  Covers:
• Care coordination
• Education and screening
• Support for individuals and families

 

HIV/AIDS

 

• NC Ryan White HIV/AIDS Program (NC DHHS)
  https://www.ncdhhs.gov/divisions/public-health/hiv-std-hepatitis/ryan-white-hivaids-program
  Covers:
• Medical care support
• Medication access
• Care coordination services

 

Kidney Disease and Dialysis

 

• NC Kidney Foundation
  https://www.nckidney.org/
  Covers:
• Education on kidney disease
• Patient support resources
• Advocacy and prevention programs

 

Organ Transplant Support

 

• Carolina Donor Services
  https://carolinadonorservices.org/
  Covers:
• Transplant education
• Support for transplant recipients and families
• Donor family resources

 

• UNC Transplant Center
  https://www.med.unc.edu/transplant/
  Covers:
• Transplant evaluation and care
• Post-transplant support
• Caregiver education

 

Caregiver-Specific Support (Medical and Disability)

 

• NC Family Caregiver Support Program (Disability-Related)
  https://www.ncdhhs.gov/divisions/aging-and-adult-services/family-caregiver-support-program
  Covers:
• Education for caregivers of adults with disabilities
• Caregiver counseling and support
• Respite coordination (disability-related)

 

Palliative and Complex Care

 

• North Carolina Serious Illness Coalition
  https://www.ncseriousillness.org/
  Covers:
• Palliative care education
• Serious illness support resources
• Care planning for complex medical needs