Missouri Resources
By Kevin on
MISSOURI — Medical, Disability, and Special Needs Resources
PART 1: CORE STATE SYSTEMS
STATEWIDE NAVIGATION AND CRISIS SUPPORT
- Missouri 211 (health, disability,
and caregiver resource navigation)
https://www.mo211.org/ - Referrals to medical, disability, and caregiver support services
- 988 Suicide & Crisis Lifeline
(Missouri)
https://www.988lifeline.org/ - 24/7 mental health and suicide crisis support
- Missouri Behavioral Health Crisis
Support
https://dmh.mo.gov/behavioral-health-crisis - Mobile crisis teams
- Connection to crisis stabilization services
MEDICAID AND DISABILITY-BASED MEDICAL COVERAGE
- Missouri Medicaid (MO HealthNet)
https://mydss.mo.gov/health-care/mo-healthnet - MO HealthNet Eligibility and
Enrollment
https://mydss.mo.gov/health-care/apply - Disability Determination Services
(SSI/SSDI medical evaluations)
https://www.ssa.gov/
HOME AND COMMUNITY BASED SERVICES (HCBS) AND WAIVERS
- MO HealthNet Home and Community
Based Services Waivers
https://mydss.mo.gov/health-care/long-term-supports - Community Support Waiver
- Children’s Autism Waiver
- Aged & Disabled Waiver
- Traumatic Brain Injury Waiver
INTELLECTUAL AND DEVELOPMENTAL DISABILITIES (I/DD)
- Missouri Department of Mental
Health — Division of Developmental Disabilities
https://dmh.mo.gov/dd
EARLY INTERVENTION AND CHILDREN WITH SPECIAL HEALTH NEEDS
- Missouri First Steps (Birth to 3
early intervention)
https://health.mo.gov/living/families/cyshcn/firststeps/ - Children and Youth with Special
Health Care Needs (CYSHCN)
https://health.mo.gov/living/families/cyshcn/ - Care coordination for children with chronic medical conditions
- Missouri Family-to-Family Health
Information Center
https://mof2f.org/ - Peer support and navigation for families of children/youth with special health care needs
ASSISTIVE TECHNOLOGY
- Missouri Assistive Technology
(MoAT) Program
https://www.at4all.org/missouri/ - Demonstrations, short-term loans, reuse programs, training
EMPLOYMENT AND INDEPENDENCE (DISABILITY-FOCUSED)
- Missouri Vocational
Rehabilitation (VR) Services
https://rehabservices.dese.mo.gov/ - Career counseling
- Job training
- Supported employment
- Missouri Commission for the
Deaf/Hard of Hearing (MCDHH)
https://mcdhh.mo.gov/ - Communication access resources
- Advocacy and accommodations
- Missouri Commission for the Blind
(MCB)
https://mcb.dese.mo.gov/ - Independent living skills
- Employment services
- Assistive technology
LEGAL RIGHTS AND ADVOCACY
- Disability Rights Missouri
(Protection and Advocacy)
https://disabilityrightsmissouri.org/ - Disability rights enforcement
- Legal advocacy
- Missouri Developmental
Disabilities Council
https://moddcouncil.org/ - Systems advocacy
- Policy guidance
- Community inclusion initiatives
MEDICARE COUNSELING (DISABILITY-RELATED)
- Missouri SHIP (State Health
Insurance Assistance Program)
https://insurance.mo.gov/consumers/ship/ - Medicare counseling for disabled adults
- Plan comparison and benefits education
CAREGIVER SUPPORT (MEDICAL AND DISABILITY)
- Missouri Family Support Division
— Caregiver Support
https://mydss.mo.gov/health-care/family-support - Caregiver education and support
- Respite assistance for caregivers of individuals with disabilities or chronic conditions
- Missouri Lifespan Respite Program
https://health.mo.gov/living/families/respite/ - Statewide respite support for caregivers
PART 2: APPENDIX — CONDITION-SPECIFIC RESOURCES
AUTISM AND NEURODEVELOPMENTAL CONDITIONS
- Autism Society of Missouri
https://autismsocietyofmissouri.org/ - Information, support, and referrals
- Missouri Autism Center (major
statewide evaluation & services network)
https://health.mo.gov/living/families/cyshcn/autism/ - Diagnostic support
- Family guidance
ADHD
- CHADD (national org — find
Missouri support options)
https://chadd.org/chapter-locator/
DOWN SYNDROME
- Down Syndrome Association of
Greater St. Louis
https://dsagsl.org/ - Family support
- Education
- Advocacy
BRAIN INJURY / TRAUMATIC BRAIN INJURY
- Brain Injury Association of
Missouri
https://bia-mo.org/ - Education and advocacy
- Support groups
- Resources for individuals and caregivers
EPILEPSY
- Epilepsy Foundation — Heart of
America Region (serving Missouri)
https://epilepsyheartofamerica.org/ - Epilepsy education
- Support groups
- Caregiver training
MULTIPLE SCLEROSIS (MS)
- National Multiple Sclerosis
Society — Missouri
https://www.nationalmssociety.org/Chapters/MOG - MS education and support
- Care navigation
PARKINSON’S DISEASE
- Parkinson Foundation of the
Heartland (serves Missouri)
https://parkland.org/ - Parkinson’s education
- Support groups
ALS
- ALS Association Mid-America
Chapter (serves Missouri)
https://www.als.org/local-support/mid-america - ALS resources and support
- Caregiver education
SPINAL CORD INJURY
- Spinal Cord Injury Network
(regional resources; statewide referrals)
https://unitedspinal.org/ - Peer support and referrals
CANCER
- Missouri Cancer Consortium
https://mocancer.org/ - Statewide cancer coalitions and resources
- Siteman Cancer Center (major
statewide referral center)
https://siteman.wustl.edu/ - Patient and caregiver support programs
RARE AND GENETIC DISEASES
- National Organization for Rare
Disorders — Missouri
https://rarediseases.org/state/missouri/
CYSTIC FIBROSIS
- Cystic Fibrosis Foundation — St.
Louis & Missouri
https://www.cff.org/chapters/missouri-chapter
SICKLE CELL DISEASE
- Sickle Cell Association of
Missouri
https://www.sicklecellmissouri.org/ - Education and advocacy
- Support services for people with sickle cell and families
HIV/AIDS
- Missouri Department of Health
& Senior Services — HIV/STD/Viral Hepatitis Program
https://health.mo.gov/living/healthcondiseases/communicable/hiv/ - Ryan White services and care coordination
KIDNEY DISEASE
- National Kidney Foundation of
Missouri & Kansas
https://www.nkfm.org/ - Kidney disease education and support
TRANSPLANT AND ORGAN DONATION SUPPORT
- LifeSource (organ donation and
transplant education)
https://www.life-source.org/ - Information for donors, recipients, and families
PALLIATIVE AND SERIOUS ILLNESS CARE
- Missouri Hospice & Palliative
Care Association
https://www.mohospice.org/ - Palliative care information and consumer support