Some days I ride the waves, other days I just hold on
By Real Ray C on
The month is closing tonight, and it feels like time slipped right through my fingers.
For me, being autistic means months don’t feel like neat little boxes on a calendar. They feel more like waves. Some days I’m riding high, full of energy, ideas, and clarity. Other days, I’m just holding on, overstimulated and retreating inward.
This month was a mix of both.
There were moments I felt proud of myself, small wins, little sparks of joy, times I could see my own growth. But there were also moments of shutdown, where I questioned if I’d ever truly fit in anywhere.
The end of a month always brings a strange kind of anxiety. I catch myself asking:
- What did I actually achieve?
- Did I waste this time?
- Or did I simply survive it?
And maybe survival is an achievement. Maybe making it through the waves, even when they crash hard, is worth honoring.
Does anyone else feel this way at the end of a month like you’re measuring yourself against invisible milestones? How do you reflect on your own months?
Replies (18)
- Charlotte: You know what? Reading all this makes me rethink my own end-of-month reflection. Even though I’m not autistic, I also feel the pressure of “what did I accomplish?” Maybe we should all take a step back and measure months by the balance of care we gave ourselves, not just the things we ticked off.
- JugglingNothing: Yes, man, preach! Achievement doesn’t have to be flashy. It can be subtle. It can be that you got through a month and you’re still standing, still showing up here, still learning. That’s not small.
- Real Ray C: What I’m realizing from this conversation is: I need to redefine what “achievement” means for me personally, not by someone else’s standards. For me, achievement might be: I didn’t burn out, I managed my energy, I honored my needs. That should count.
- Eli Mercer: That means a lot, Charlotte. Sometimes it feels like the world is rushing and I’m the only one pausing. But having people who see value in that pause makes it feel less lonely.
- Charlotte: Eli, your honesty is so valuable here. I never realized how much “planning for uncertainty” plays into everyday life for you. It makes me think we should normalize rest and recovery as legitimate accomplishments, not just things you do in between “real” achievements.
- JugglingNothing: Ray, exactly! It’s like managing energy the way others manage money. No one says, “You didn’t spend all your cash today, so it’s wasted.” Yet with energy, we guilt ourselves for resting. Rest isn’t wasted—it’s an investment. Without it, there’s nothing left to give tomorrow.
- Real Ray C: That’s me too, Eli. I’ll cancel everything else after a big sensory day and feel like I failed. But maybe it’s not failure—it’s me protecting myself. I need to work on seeing that differently.
- Eli Mercer: I relate so much, Miles. For me, even going to the grocery store can feel like an “event” I need to budget energy for. If I recover afterward, I try to remind myself that’s not wasted—it’s part of the process. But I still feel guilty sometimes.
- Charlotte: That makes so much sense. And honestly, I think if more people understood how much energy that takes, they’d be more compassionate. Just because it doesn’t look like traditional productivity doesn’t mean it’s not effort.
- JugglingNothing: Charlotte, you nailed it about “invisible work.” Like yesterday, I spent half the day recovering from sensory overload after a loud shopping trip. From the outside, it looks like I did nothing. But from the inside, that was actually me working really hard just to regulate and not spiral.
- Charlotte: Miles, that’s a really good point. Most people would never count bouncing back as wasted time—they’d see it as resilience. I think the world just doesn’t give enough credit to the invisible work you all do every day to keep moving forward.
- JugglingNothing: Eli, yeah, I feel that too. Sometimes I think our brains just naturally keep score in ways that don’t reflect reality. Like, it’s not “I survived three shutdowns and bounced back,” it’s “I wasted three days.” When really, bouncing back is progress.
- Eli Mercer: Charlotte, I appreciate you saying that. From the outside, it probably seems obvious—life isn’t a checklist. But from the inside, it’s so easy to get trapped in that feeling that I didn’t “do enough.” It helps hearing someone outside that loop remind us.
- Real Ray C: Bro, I feel that. I forget to count the quiet wins, like maintaining a routine or just keeping myself afloat. I tend to measure only the “big” things. But you’re right, not crashing is an achievement.
- Real Ray C: Eli, I like how you put it—messy mix of energy and exhaustion. That feels exactly right. Maybe I should stop trying to make the month feel “neat.” It never has been, and maybe that’s okay.
- Charlotte: We put too much pressure on months as markers of success. Life isn’t always about tidy milestones—sometimes just pushing through the ups and downs matters more than any checklist. You’re being harder on yourself than you need to be, Ray.
- JugglingNothing: Yeah, man, I get this. I always end a month trying to tally up “wins” in my head, and if I can’t find enough, I feel like I wasted time. But sometimes I realize, hey, I didn’t burn out completely, I kept my routine going, I showed up. That actually counts more than I give myself credit for.
- Eli Mercer: Ray, I relate to this a lot. For me, months don’t feel like tidy chapters either. They’re more like this messy mix of energy and exhaustion, and I always wonder if I’ve “done enough.” But honestly, I think survival itself is something. Getting through the waves is no small thing.