People Think I’m Not Answering, But I’m Still Trying to Speak
By Real Ray C on
One of the hardest things about having trouble with speech or word retrieval isn't always the communication problem itself. Sometimes it's the way other people react when they don't understand what's happening.
I've experienced communication difficulties in the context of epilepsy, concussions, and medication, and one thing I've learned is that there can be different reasons someone suddenly struggles to speak or find a word. Not every difficulty finding words is aphasia, but neurological conditions, brain injuries, and other factors can affect communication in different ways. That's why it's important to have new or worsening symptoms evaluated rather than trying to diagnose yourself.
For me, the frustrating part has been when people assume I'm not paying attention, don't understand them, or simply aren't trying to answer. Sometimes I know exactly what I want to say. The thought is there. The word just won't come out.
And when someone keeps saying, "Come on, just answer me," it doesn't make the word appear any faster.
If anything, the pressure can make communication even harder.
This is something I wish more people understood about anyone dealing with aphasia or other neurological communication difficulties. Taking longer to respond doesn't necessarily mean someone isn't listening. It doesn't mean they're confused about everything. And it certainly doesn't mean they're unintelligent.
Sometimes they just need another few seconds.
I've also learned how important it is to tell your neurologist or other healthcare provider exactly what you're experiencing. When did it start? Does it happen all the time or only during certain situations? Did it begin after a medication change? Does fatigue make it worse? Are you having trouble finding words, understanding language, speaking clearly, or all of these?
Those details matter because communication problems can have different causes and may require different approaches.
And if you feel like your concerns aren't being taken seriously, you don't have to simply accept that. Asking questions, requesting further evaluation, or getting a second medical opinion is completely reasonable.
Most importantly, don't let difficulty communicating change the way you see yourself.
A missing word doesn't mean a missing thought. A slow response doesn't mean an empty mind. And struggling to communicate doesn't make someone less intelligent or less capable.